Join Us for our DINE, DANCE, DONATE Event on April 27th
Walk or Run in the Famous Falmouth Road Race on August 18th! In Person or At Home!
Star Gardtians
StarGardtians, Inc. (Star Guardians) is a not-for-profit organization focused on raising awareness and implementing educational enhancements for those living with Stargardt’s Disease.
Together we envision a brighter future for Stargardtians, where each person’s journey is met with understanding, resilience and unwavering hope.
“It’s Not What I Can See, It is What I Can do that Defines Me” ALERICA
We may not have sight...but we have a vision!
Your donations and support help to fund scholarships and small business grants to those living with Stargardt’s Disease that want to start a business or go to college.
Vision loss from Stargardt’s disease usually begins in childhood during the first 20 years of life.
Stargardt’s disease affects about 1 in 10,000 people, making it the most common inherited retinal dystrophy. It is estimated that approximately 30,000 people in the US are affected by Stargardt’s.
2024 Stargardt’s Summit
The Stargardt’s Summit was held on February 29, 2024 with the goal to share the latest resources and information with the Stargardt’s community. Attendees learned about the newest research, explored adaptive living resources, heard impactful patient stories, and connected with others going through a similar journey.
The Carroll Center for the Blind
Falmouth, Cape Cod, Massachusetts
Headquartered in Falmouth’s beautiful historic downtown district, we are minutes away from some of the best restaurants, cafes, and boutiques that Cape Cod has to offer. We are a short commute away from Boston, MA and Providence, RI.
About Us
Our Vision: A world where individuals affected by Stargardt disease live with hope, resilience, and empowerment.
Our Mission: Stargardtians, Inc. is dedicated to improving the lives of those impacted by Stargardt disease. Through advocacy, education, and research, we strive to:
Raise awareness about Stargardt disease and its impact on vision.
Provide support and resources for affected individuals, their families, and caregivers.
Foster collaboration among researchers, clinicians, and patients to accelerate advancements in treatment and ultimately find a cure.
Our Values: Compassion, Innovation, and Perseverance.
Star Guardians was started as a way to teach others about Stargardt’s Disease and the impacts that it has on individuals and families. Our donations and support help to fund a scholarship or business grant for those with Stargardt’s.
Matt and one of his sisters both have Stargardt’s and have been adapting and living with the disease for many years.
Our Team
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Matthew Carmichael
Executive Director
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Joelle Carmichael
Director